{"id":1370,"date":"2023-06-20T10:59:04","date_gmt":"2023-06-20T10:59:04","guid":{"rendered":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/2023\/06\/20\/groundbreaking-report-launched\/"},"modified":"2023-07-27T16:36:20","modified_gmt":"2023-07-27T16:36:20","slug":"groundbreaking-report-launched","status":"publish","type":"post","link":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/2023\/06\/20\/groundbreaking-report-launched\/","title":{"rendered":"Groundbreaking report launched"},"content":{"rendered":"<p><strong>On Tuesday, June 20, 2023, Wales\u2019s two children\u2019s hospices, T\u0177 Hafan and T\u0177 Gobaith launched a ground-breaking new report which explores trends within the population of children with life-limiting conditions in Wales in the decade from 2009 to 2019.\u00a0<\/strong><\/p>\n<p>The Children in Wales Requiring Palliative Care: Trends in Prevalence and Complexity 2009 \u2013 2019 Report is the first piece of published research ever undertaken to look specifically at the trends within the population of children with life-limiting conditions in Wales.<\/p>\n<p><strong>Key findings of the report include:<\/strong><\/p>\n<ul>\n<li>1 in every 172 under 18s living in Wales has a life-limiting condition<\/li>\n<li>The number of children living with life-limiting conditions in Wales rose by almost<span class=\"Apple-converted-space\">\u00a0 <\/span>25% between 2009 and 2019<\/li>\n<li>The number of young people aged between 0\u00a0and 26-years-old living with life-limiting conditions in Wales between 2009 and 2019 rose by almost 33%<\/li>\n<li>More than 50% of all deaths of children in Wales between 2009 and 2019 were deaths of children with life-limiting conditions<\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1371 size-full\" src=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg.webp\" alt=\"Prevalency report Infographic Ty Hafan Ty Gobaith\" width=\"1000\" height=\"707\" srcset=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg.webp 1000w, https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg-300x212.webp 300w, https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg-768x543.webp 768w, https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg-600x424.webp 600w, https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-content\/uploads\/sites\/2\/2023\/06\/prevalency-report-infographic-en-jpg-31x23.webp 31w\" sizes=\"(max-width: 706px) 89vw, (max-width: 767px) 82vw, 740px\" \/><\/p>\n<h4 style=\"text-align: center;\"><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/prevalency-report-infographic-cy-jpg.webp\" target=\"_blank\" rel=\"noopener\">Gallwch weld yr ffeithlun yn Gymraeg yma<\/a><\/h4>\n<p>The research underpinning the Children in Wales Requiring Palliative Care: Trends in Prevalence and Complexity 2009 \u2013 2019 Report\u00a0has been undertaken by a team from the University of York and funded by the Welsh Government through the National Programme Board for Palliative and End of Life Care.<\/p>\n<p>Jayne Bryant MS, sponsored the launch event for the report which took place at 12 noon in the Pierhead Building, Cardiff Bay.<\/p>\n<p>Other keynote speakers at the launch included the report\u2019s authors Professor Lorna Fraser (King\u2019s College London) and Dr Stuart Jarvis (University of York) as well as representatives of families who access services from both T\u0177 Hafan and T\u0177 Gobaith.<\/p>\n<p>Other attendees included key policy makers, health and care representatives and families who access hospice services.<\/p>\n<p>Maria Timon Samra, Chief Executive of T\u0177 Hafan Children\u2018s Hospice, said: \u201cWe are very proud of this ground-breaking report, the first ever to look specifically at children with life-limiting conditions in Wales.<\/p>\n<p>\u201cThe Children in Wales Requiring Palliative Care: Trends in Prevalence and Complexity 2009 \u2013 2019 Report<b> <\/b>shows just how important the services provided by T\u0177 Hafan and T\u0177 Gobaith Children\u2019s Hospices are.<\/p>\n<p>\u201cThey are not only unique, holistic services for some of Wales\u2019s most vulnerable children and their families who are facing intense health challenges and all that come with such challenges, but Wales\u2019s two children\u2019s hospices are also taking a huge amount of pressure off an already very over-stretched NHS. More than ever this reinforces the need for a sustainable long-term funding solution from the Welsh Government.\u201d<\/p>\n<p>Andy Goldsmith, Chief Executive of Hope House T\u0177 Gobaith, said: \u201cThe trends identified in this ground-breaking report predict that demand for the services provided by T\u0177 Hafan and T\u0177 Gobaith is going to rise steeply. It also shows that that the type of services we provide will need to adapt to keep up with the increasingly complex conditions that children are now living with.\u201d<\/p>\n<p>Eluned Morgan, Welsh Government Minister for Health and Social Services, said: \u201cThis is a really important report, providing Wales specific data. I look forward to continuing to work with hospices, families and the NHS to ensure children with life-limiting conditions and their families have access to the services and support they need.\u201d<\/p>\n<h4><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/HH_Prevelancy-Report-English.pdf\" target=\"_blank\" rel=\"noopener\">Click here to read an executive summary of the report in English.<\/a><\/h4>\n<h4><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/HH_Prevelancy-Report_Welsh.pdf\" target=\"_blank\" rel=\"noopener\">Cliciwch yma i ddarllen crynodeb gweithredol o&#8217;r adroddiad yn Gymraeg.<\/a><\/h4>\n<h4><strong>You can read the full report by clicking on the link below:<\/strong><\/h4>\n<h4><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/07\/Prevalence-Complete-Report-2023.pdf\" target=\"_blank\" rel=\"noopener\">Click here to read the report in full.<\/a><\/h4>\n<p>&nbsp;<\/p>\n<hr \/>\n<h4><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-1373\" src=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/WhatsApp-Image-2023-06-12-at-13.32.35-735x1024.webp\" alt=\"Seth Burke\" width=\"365\" height=\"509\" \/><\/h4>\n<h4>Our family stories<\/h4>\n<p>As ever, the children and families we support are at the heart of everything we do. For the launch of this report we would like to say a massive thank you to the following families for sharing their stories with us and supporting us in person at the Pierhead Building in Cardiff Bay where the launch event took place.<\/p>\n<h4><strong>Read their stories below:<\/strong><\/h4>\n<p>&#8216;Little monkey&#8217; Bedwyr lives with his family in Llanrwst. <strong><a href=\"https:\/\/www.hopehouse.org.uk\/blog\/bedwyrs-story\" target=\"_blank\" rel=\"noopener\">Read Bedwyr\u2019s story here<\/a>.<\/strong><\/p>\n<p>Welsh International Boccia player and USW graduate Tom works for Disability Sport Wales and lives in Cardiff. <strong><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/2023\/06\/15\/toms-story\/\" target=\"_blank\" rel=\"noopener\">Read Tom\u2019s story here.<\/a><\/strong><\/p>\n<p>When Dylan&#8217;s wife Teresa died suddenly, he became daughter Keira&#8217;s primary carer 24\/7 at their home in Welshpool. <strong><a href=\"https:\/\/www.hopehouse.org.uk\/blog\/kieras-story\" target=\"_blank\" rel=\"noopener\">Read Kiera\u2019s story here.<\/a><\/strong><\/p>\n<p>Youth activist Seth from the Vale of Glamorgan is the first wheelchair user to take a seat in the Senedd.\u00a0<strong><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/2023\/06\/15\/seths-story\/\" target=\"_blank\" rel=\"noopener\">Read Seth\u2019s story here.<\/a><\/strong><\/p>\n<p>Hope House T\u0177 Gobaith is &#8216;a massive breath of fresh air for me and Myles&#8217;, says Georgia, who lives in Holywell with her son.\u00a0<strong><a href=\"https:\/\/www.hopehouse.org.uk\/blog\/myles-family-story\" target=\"_blank\" rel=\"noopener\">Read Myles\u2019 family story here.<\/a><\/strong><\/p>\n<p>At\u00a0T\u0177\u00a0Hafan, Cai could could be himself, says mum Micaela, from Cardiff.\u00a0<strong><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/2022\/11\/08\/cais-story\/\" target=\"_blank\" rel=\"noopener\">Read Cai\u2019s story here.<\/a><\/strong><\/p>\n<p>&nbsp;<\/p>\n<p>If you would like to help us by raising awareness of the work that we do please download this tile and share it on your own social feeds throughout Children&#8217;s Hospice Week.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1375 size-large\" src=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/Childrens-Hospice-Week-2023-social-media-tile--1024x1024.webp\" alt=\"Children's Hospice Week 2023 Social Media Tile\" width=\"1024\" height=\"1024\" \/><\/p>\n<h4 style=\"text-align: center;\"><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/wp-content\/uploads\/2023\/06\/I-am-supporting-childrens-hospice-week-jpg.webp\">Click here to download\u00a0<\/a><\/h4>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h3 style=\"text-align: center;\"><a href=\"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/about-us\/political-work\/\">Find out more about our political work here<\/a><\/h3>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>On Tuesday, June 20, 2023, Wales\u2019s two children\u2019s hospices, T\u0177 Hafan and T\u0177 Gobaith launched a ground-breaking new report which explores trends within the population of children with life-limiting conditions in Wales in the decade from 2009 to 2019.\u00a0 The&#8230;<\/p>\n","protected":false},"author":9,"featured_media":1377,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[37,31],"tags":[],"class_list":["post-1370","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyhoeddiadau","category-dan-sylw"],"acf":[],"_links":{"self":[{"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/posts\/1370","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/comments?post=1370"}],"version-history":[{"count":5,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/posts\/1370\/revisions"}],"predecessor-version":[{"id":1582,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/posts\/1370\/revisions\/1582"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/media\/1377"}],"wp:attachment":[{"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/media?parent=1370"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/categories?post=1370"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dev.ty-hafan.spindogs-dev7.co.uk\/cy\/wp-json\/wp\/v2\/tags?post=1370"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}